From FRAXA Foundation: FRAXA Research Foundation is funding a clinical trial of metformin for teens and adults with Fragile X syndrome. The trial is being conducted by Dr. Sean McBride and colleagues at Rowan University in New Jersey, in collaboration with the University of Pennsylvania. Men and women ages 16-50 with Fragile X syndrome are…Details
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Register at https://profectum.org/raising-bar-nj-2019-conference/#1532723985508-e0318038-cf2e See the full brochure here: https://profectum.org/wp-content/uploads/2019-NJ-Ed-Conference-Brochure-v1.pdf From Profectum: Profectum and Celebrate the Children’s first Annual Education Conference, co-sponsored by the New Jersey Center Autism Center of Excellence is bringing together public and private developmental schools and clinical programs from around the country to train other professionals working in the field of education on November 7th and…Details
The Division of Developmental Disabilities (DDD) has developed a series of anonymous surveys to help us better understand the relationship between support coordinators, providers, individuals and families, and find ways to improve services. The Individual and Family Experience Survey will only take a few minutes to complete and is intended to capture the perspective of the individual and his/her…Details
Researchers study the interplay and comorbidities to understand the commonalities between movement disorders and seizures. Abstract: Seizures and movement disorders (MDs) are distinct neurological conditions presenting with abnormal movements. Despite sharing an overlap in phenomenology, these movements have different origins. In order to explore the overlaps and the narrow boundaries between these two conditions, we…Details
This brainstorming event is aimed to learn from and inform parents of children up to 5 years old and/or with a recent diagnosis of Autism Spectrum Disorder. We have a goal the find the gaps in what families need, and what information is missing in this stage of life prior to school entry. Surveys will…Details